My big brother Scott who lives in Los Angeles flew to New York via the red eye for an incredible cause. He participated in a charity golf tournament to raise money and awareness for a genetic disease called Tuberous Sclerosis Complex.It is life threatening and often misdiagnosed. It causes epilepsy, cancer, autism, kidney disease, heart disease and brain tumors.A work colleague of my brother has a 10 year old daughter , Emmory,who was diagnosed with this at 4 months of age.Marla and Marc Shapses formed in 1999 the ERS Charitable Foundation named for their daughter. Today they raised over $400,000.
If interested in knowing more go to www.tsalliance.org